Boy With Rare Genetic Condition Told He Can’t Return To School Amid Fears He May Spread Coronavirus

Share on Facebook

A mother has expressed her shock and outrage after her son, who lives with a rare genetic condition, was told he cannot return back to school, despite the rest of his classmates doing so…

Some people have lost family members, some have lost their jobs, and some have had to simply adapt to working from home… Everybody’s situation is different.

Those already living with debilitating health conditions have been impacted the worst throughout the pandemic.

So they have had to adopt more precautionary measures in order to keep themselves safe.

A mother has gone viral this week after she expressed her shock and outrage over the blatant discrimination against her son, who suffers from a rare genetic condition.

Despite him apparently being at “no higher risk than his classmates.”

The speed of infection of coronavirus has been terrifying – as it stands, there are over twenty-two million cases of the virus worldwide.

At the time of writing, there have been 777, 766 recorded COVID-19 deaths.

However, not all children have been allowed to go back.

Like most children, 4-year-old Ryan, from Hertfordshire, England, has been home from kindergarten since the start of the pandemic in March.

Ryan suffers from the incredibly rare genetic disorder, Treacher-Collins syndrome.

But what exactly is Treacher-Collins syndrome?

Treacher-Collins syndrome is a disorder that stops the bones in the face from forming properly – the condition was first brought to the public’s attention by the 2017 movie, Wonder. In the film, Jacob Tremblay, who lives with the condition, stars alongside Julia Roberts and Owen Wilson as Auggie, a character with Treacher-Collins who covers up his face by wearing a space helmet.

But he does suffer from a number of different health complications.

His small jaw and upper airway mean that his tongue could block his airway any moment, causing him to fatally choke.

And he enjoys and lives his life like any other child, including holding a passion for the piano.

And they have since told his mom, Victoria Macklin, that thanks to health and safety regulations in place, he will be unable to return to school along with his classmates.

Victoria, who has from the condition herself, has spoken to many healthcare professionals who do not think children with tracheostomies are more likely to spread the virus than their classmates.

Victoria told the Mirror Online: “The letter says he is no more at risk than other children and is not a risk to others. Public Health England needs to find a way for these children to go to school rather than preventing them.”

She said: “He is very excited about going to school. He was only at nursery for a year and 2 months.”

She explained: “Those first few days are very important, especially for children like Ryan.”

In a bid to build pressure on the government to change its guidelines and accommodate children who have had a tracheostomy. “Please help prevent this discrimination and get these children into schools, where they need to be.” You can sign the petition here.