Céline Dion has left fans heartbroken after sharing a distressing look at her battle with stiff person syndrome (SPS) in her new documentary.
The legendary singer, 56, revealed in December 2022 that she suffers from this rare neurological condition.
SPS affects only one or two people per million, causing muscle stiffness and painful spasms, according to John Hopkins Medicine.
Céline’s shocking announcement came via an emotional Instagram video where she detailed how the condition impacts her daily life.
“Unfortunately, these spasms affect every aspect of my daily life,” she explained, adding that they sometimes hinder her ability to walk and sing.
The singer even revealed she ‘almost died’ due to the severity of her condition.
Now, her newly released Amazon Prime documentary, *I Am: Céline Dion*, reveals the terrifying reality of her illness.
One particularly harrowing clip shows Céline enduring a ‘crisis’ seizure, leaving viewers in tears.
The footage captures Céline gasping for breath, her bare feet rigid as she writhes in agony.
Medical professionals rush to her side, laying her down, checking her vitals, and trying to ease the uncontrollable spasms.
After ten minutes of sheer torment, the seizure finally subsides.
Céline, wrapped in a blanket, sits up and confesses the ordeal’s emotional toll, calling it “incredibly embarrassing.”
“Every time something like this happens it makes you feel so embarrassed,” she says, struggling to express her feelings about losing control over her body.
The documentary offers a raw, unfiltered look at Céline’s life since her diagnosis, showing the once-powerhouse performer at her most vulnerable.
The decision to include the ‘crisis’ footage in the film wasn’t taken lightly.
Irene Taylor, the documentary’s director, initially hesitated to capture the painful episode.
However, Céline insisted that nothing be censored, telling Taylor not to ask permission to film such moments.
“I did decide to keep filming, knowing that we didn’t have to use it,” Taylor told Press Associates.
Yet, Céline was adamant that the footage be included, showcasing the harsh reality of her condition.
“Believe it or not, she left that location in very high spirits,” Taylor recalled.
Céline even comforted Taylor, squeezing her hand and reassuring her, “Don’t worry about what happened.”
This gesture highlighted Céline’s resilience and determination to share her true story with the world.
Céline Dion’s journey with stiff person syndrome has been a harrowing one.
The Canadian singer rose to global fame in the 1990s, captivating audiences with her powerful voice and emotional performances.
Hits like “My Heart Will Go On” from the *Titanic* soundtrack cemented her status as a music icon.
However, her glittering career was overshadowed by personal tragedies and health battles.
In 2016, Céline’s beloved husband and manager, René Angélil, passed away after a long fight with throat cancer.
This devastating loss marked a turning point in her life, but she continued to perform and honor his legacy.
Her diagnosis with SPS in 2022 forced her to withdraw from the public eye, halting her career and leaving fans concerned.
Stiff person syndrome is a rare and incurable disorder that progressively impacts mobility and quality of life.
Patients often experience severe muscle stiffness, spasms, and difficulties with movement, balance, and speech.
For Céline, a singer known for her vocal prowess, this diagnosis was particularly devastating.
The singer has been candid about her struggles, using her platform to raise awareness about SPS.
Despite her pain, Céline remains a beacon of hope and strength for her fans.
The documentary not only highlights her physical battles but also her indomitable spirit.
Céline’s willingness to share her most vulnerable moments showcases her commitment to honesty and transparency.
Her story resonates with millions, shedding light on the hidden battles many face with chronic illnesses.
As fans watch her journey unfold on screen, they are reminded of Céline’s enduring legacy and resilience.
*I Am: Céline Dion* is a poignant testament to her bravery in the face of unimaginable adversity.
Céline’s story continues to inspire, offering a message of hope and perseverance.
The documentary is now available to stream on Amazon Prime, providing an unfiltered look at the life of a music legend.
Céline Dion’s battle with stiff person syndrome is a stark reminder of the fragility of life and the strength of the human spirit.
Her openness about her condition has sparked conversations and brought much-needed attention to SPS.
Through her pain and triumph, Céline Dion remains a true icon, unyielding in her quest to share her truth with the world.