The couple's three-year-old daughter, Adelaide, was born with a rare form of epilepsy. Since day one, Adelaide's life hung in the balance as the family fought to find a cure. Sadly, after three years of fighting, the toddler was put into a hospice, her days numbered. Kelly and Miguel did not only have to prepare themselves for the tragic loss, but they also had to prepare their firstborn, seven-year-old Jackson.
Jackson had been by his little sister's side every step of the way as she battled this rare form of epilepsy. The news that Adelaide was not long for this world would not be easy for young Jackson. His mom documented what happened in the final post of her blog, Inchstones.
The blog became a lifeline for Kelly, giving her a place to log her thoughts and feelings as well as raise awareness about the condition.
It truly is heartbreaking how well Jackson took the news and how much support the little one has provided his wonderful parents...
2016 was a life-changing year for the Cervantes family.
Adelaide was later diagnosed with infantile spasms.
via: kellycervantes.comThis is a rare form of childhood epilepsy and, as Kelly put it in her blog, the science just wasn't there yet to save Adelaide. The resilient mom wrote: "there is little we can do to definitively improve Adelaide’s condition: we are waiting for science to catch up to her."
The whole family pitched in to raise awareness about the condition.
Kelly found solace in connecting with other families going through something similar.
via: kellycervantes.comThrough her advocacy as a board member for CURE, Kelly met lots of people who faced similar challenges within their own families. This sense of community that she found bolstered her to keep fighting.
Miguel used his platform to spread awareness.
Jackson was never kept in the dark about his little sister's condition.
via: kellycervantes.comHer big brother was by her side every step of the way.
Adelaide required full-time care.
via: kellycervantes.comKelly documented the experience of caring for a child with infantile spasms through her blog, describing her daily routine of physical therapy, a visit from Adelaide's palliative care team, and then an oxygen tank delivery.
Kelly revealed that, as her daughter's condition worsened, she became scared to leave the house.
via: kellycervantes.comThe destabilizing worry that her daughter's condition would worsen left her not wanting to go outside. In her blog, she explained the decision to have all of Adelaide's treatments at home: "As Adelaide has grown more and more unstable, extended drives in the car no longer feel safe. At this point, we only utilize services that can be offered in our home since the less transport the better, both for her health and my sanity."
With Miguel busy touring with Hamilton, Kelly was often alone with the kids.
"I've accepted that I can't change Adelaide's future but I can make sure that Jackson has the best opportunity to emotionally navigate his."
via: kellycervantes.comKelly revealed that Jackson has been seeing a therapist for over a year and has stated that she would encourage other parents in a similar situation to do the same. According to Kelly, the "healthy" sibling in a family that has a child with special needs can be prone to bottling up their feelings, not wanting to put more stress on their parents.
"In an unnecessary role-reversal, the child tries to protect the parent."
It's difficult for adults to process grief...
Kelly decided to make a memory box for Jackson.
When Adelaide was moved to the hospice, they knew it was time to talk to Jackson.
"It felt awful to have to share this dark cloud with him..."
Kelly believes that the memory box has helped Jackson process.
"Kids are resilient, man."
Sadly, Adelaide's death came quicker than the family anticipated.
"Finally, she is free from pain."
"I promise you, my angel baby, that your efforts, your fight, your life will not have been in vain.""Dear Adelaide," Kelly writes a letter to her little girl whilst processing the news that her condition had become terminal. We can only imagine how difficult something like that would be to write. Kelly's strength and resilience shine through. At the end of the post, Kelly writes: "Our loss will shatter me in ways I never thought possible but you’ve provided us with everything we need to heal. When it’s time sweet girl, we’ll be with you, and forever after."
The family has received an outpouring of well-wishes on Twitter.
@MiggstaC09 @KellyGC411 You and Kelly handled this entire tragedy with nothing but class and dignity. The world has… https://t.co/dTHKavvMkz— Eric Burgess (@Eric Burgess)1571065635.0
Many were impressed at Miguel's resilience.
@MiggstaC09 @KellyGC411 Saw you perform in Chicago the day your daughter entered hospice. You are amazing! God bless all of you— Erin Fallis (@Erin Fallis)1571069364.0
Miguel thanked fans for their kind messages.
Dear everyone. Just wanted you to know that @KellyGC411, Jackson and I are doing ok. We are comforted knowing th… https://t.co/9uujFCE8jO— Miguel Cervantes (@Miguel Cervantes)1571063630.0