This Child, Suffering From a Rare Genetic Condition, Is Known as the ‘Baby Hulk’

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Or a debilitating condition, for that matter.

Curiosity, not ridicule, is very normal.

It might be a term of endearment or it might be one of crass promotion. But the medical curiosity can still be real.  

That’s understandable. One baby was bestowed such a name with good reason.

However, there’s an inspirational outcome to this tale, so hang on.

But when Joni’s daughter Madison was born, it was clear that she was not like other kids. See her story below!

It’s a condition known as “cloves” which causes lymphatic fluid to build up in the arms and chest. It affects only 200 people in the world, making it an extremely rare condition. The doctors knew that without treatment, the swelling would continue to grow…

The kids thought it was the coolest and were actually impressed by Madison’s condition, so the parents just kept on using the nickname. Joni said, “Her nickname started during an instance where twin boys asked me what was wrong with her, I told them her daddy was the Hulk and they thought it was the coolest thing ever. After I told them she was the Hulk’s daughter they wanted to be her best friend.”

“I don’t want people to be scared of my daughter, there’s nothing wrong with her, she just has a gene malfunction.” “I’ve told younger children she’s a baby Hulk because I don’t think they would understand the condition, and at least this way, they aren’t scared of her and don’t treat her differently. You have to try to have a sense of humor with something like this.”

“When she was born she looked like a cute little blob with legs. We believed the mass weighed 3 lb. Now I think it’s around 5 lb.”

Slowly, the fluid is drained and replaced with saline.

Once the swelling goes down to a certain size, it will be treatable through surgery. The family is low on funds, so they’ve turned towards crowdsourcing to help raise the money necessary for her treatment. Here’s the link to the family’s GoFundMe page, which has a target of $5,000. With everyone’s help, they can treat this disease and get Madison running around soon after!

Madison’s brave face could serve as an inspiration to all of us, no doubt.

Fight on, Madison!